This innovative, multi-level three-year project to increase the voice of direct stakeholders (people living with conditions that require palliative care now or may in the future) in South Africa and Ethiopia is set to start February this year.
The project will engage direct stakeholders to tell their story and speak out about the issues that matter most to them. It will be a model collaboration between international, regional, national and community-level groups, as well as individual patients and carers.
The stories will be recorded on video or audio, and disseminated to specific target audiences using the latest social media technology, as well as more traditional means, such as regional and national news media, organisational communications channels, community meetings, and direct advocacy with national governments.
Project partners are: The Worldwide Hospice Palliative Care Alliance (WHPCA), The African Palliative Care Association (APCA), the Hospice Palliative Care Association (HPCA) of South Africa and Hospice Ethiopia.
This project aims to increase access to palliative care by providing people with a platform to bring attention to the issues that matter, and to educate others who might benefit from palliative care as part of Universal Health Coverage (UHC).
Previous research has identified a low demand for palliative care, and lack of political will as two main barriers to accessing palliative care. This project will address these two issues and should provide lessons for others to use worldwide.